​The U.S. Healthcare System Wasn’t Built for Our Families
Families caring for children with complex medical needs face a daily reality of emotional, physical, and financial strain — often with little relief.
The National Center for Pediatric Palliative Care Homes (NCPPCH) is a national nonprofit advancing an innovative solution: local, community-based homes that provide overnight respite, palliative, and hospice care tailored to the needs of medically fragile children and young adults, particularly those with life-limiting conditions.
We are building a national movement to make these homes a standard part of the care continuum — so families are never left to navigate this journey alone
VISION:
​All children with medical complexities and their families will be able to access a safe, compassionate, and skilled pediatric palliative care home in their community for trusted respite, and palliative care support.
MISSION:​
To scale, strengthen and sustain the growing network of pediatric palliative care homes across the U.S.
Our Three Pillars of Activities
1. Education & Awareness
We amplify the voices of families and providers to highlight critical gaps in care and the urgent need to grow a network of community-based pediatric respite, palliative, and hospice care homes. We collaborate with partners advancing the broader pediatric palliative care field.
2. Advocacy
We drive systemic change at the state and federal levels by advancing licensing, reimbursement, and regulatory reforms that remove barriers and enable these home-based models to expand across the country.
3. Community Building
We provide direct mentoring and technical support to local leaders—sharing best practices, fostering peer connection, and helping new and existing homes thrive.