Foundational Partners
We are deeply grateful to the partners whose early, multi-year investments are helping build the national infrastructure needed to strengthen and sustain pediatric palliative care homes across the U.S. Their support during a formative period has enabled growth, policy engagement, and essential field-building work.
Building What Has Been Missing
Families caring for children with complex medical needs should not have to navigate this journey alone.
Yet across much of America, families still lack access to community-based respite, pediatric palliative care, family navigation, and other compassionate supports that help children live fully and families remain strong.
The National Center for Pediatric Palliative Care Homes is working to change that.
We bring together families, healthcare leaders, policymakers, and community organizations to expand care options, strengthen local capacity, advance sustainable policy solutions, and help communities develop the models of support that best meet their needs.
Together, we are building a future where every child and family can access compassionate care and meaningful support close to home.
VISION:
​All children with medical complexities and their families will be able to access a safe, compassionate, and skilled pediatric palliative care home in their community for trusted respite, and palliative care support.
MISSION:​
To scale, strengthen and sustain the growing network of pediatric palliative care homes across the U.S.
Our Three Pillars of Activities
1. Education & Awareness
We amplify the voices of families and providers to highlight critical gaps in care and the urgent need to grow a network of community-based pediatric respite, palliative, and hospice care homes. We collaborate with partners advancing the broader pediatric palliative care field.
2. Advocacy
We drive systemic change at the state and federal levels by advancing licensing, reimbursement, and regulatory reforms that remove barriers and enable these home-based models to expand across the country.
3. Community Building
We provide direct mentoring and technical support to local leaders—sharing best practices, fostering peer connection, and helping new and existing homes thrive.