The purpose of this council is to recognize the unique efforts and challenges of a subset of community-based pediatric respite, palliative and hospice providers that have already successfully opened, are actively pursuing, or have passionate intent to form an organization similar in scope to the U.K’s freestanding “Helen House” care model.

This forum of representative leaders from these programs will meet regularly to discuss, debate, and develop action-step recommendations to the National Center for Pediatric Palliative Care Homes Board, and to review and guide best practice insights relevant for dissemination out to the broader “Like House coalition”.
 

This council provides the opportunity to gain consensus and alignment on issues and priorities important to amplify a shared voice and streamline decision-making with the intention of scaling these models.